I feel like Lydia has gotten a lot of time on the blog lately, but it’s always about our concerns and her medical journey. Our concerns are big and they are real {and I’ve got some updates ready to be shared in the next couple of days} but I also just want to remember our …
Developmental-Behavioral Pediatric Specialist
Oh boy. This is going to be a BIG long post. This week has been overwhelming to say the least. My emotions are ALL over the place and it has been difficult. I think we are all feeling like this is a defining and refining time for our family. On Sunday afternoon, the kids and …
Neurology
***FYI, we do not put Lydia in a mask – we just had got some new ones for Sarah and we tried it on Lydie*** A couple days before Thanksgiving, Lydia had her long awaited neurology appointment at Primary Children’s Hospital. Everything was kind of hinging on this appointment and we were anxious to get …
Dysphagia Clinic
Lydia update! To catch up on how we got here, read this post. Last week, we had our appointment with the Dysphagia Clinic at Primary Children’s Hospital. Our other kiddos were able to stay with my parents while I went with Lydia (only one person is allowed with the patient, so Mark stayed and worked …
Sweet Lydia
Are you ready for another wellness post from our family? To be completely honest, I am not sure if I am up to writing one. But this blog, is first and foremost, a journal of our family. And our journal would not be complete without this. So, buckle up, it’s going to be a LONG …
Lydia’s 1st Birthday
This little lady is ONE YEARS OLD! Lydia is an incredible little spirit. She brings a light to our family that is unique and beautiful. She is everyone’s “favorite” and is endlessly patient and sweet with all of us. Favorite Things Books Piggies by Audrey Wood & Don Wood Tell Me Something Happy Before I …
Lydia’s 11th Month
How are we only one month away from her first birthday?! If I could freeze time right now – I would! It’s hard to imagine that at one point this little one struggled to put on the weight! Lydia is sitting nicely at 21 pounds 12 ounces (75%) and is measuring about 28 1/4 inches …
Lydia’s 10th Month
This little one is in double digits! I can’t believe we are nearing her one year mark. Lydia is full of lovable, wonderful, chunkiness. She is 20 pounds 4 ounces (64%) and 28.3 inches in length (59%). She is still in nine month size clothes and takes one nap. Her routine is pretty solid right …
Lydia’s 9th Month
Oh Lydie Lou…how are you nine months already?! Time is flying by with this little girl and yet it feels like she has been ours forever. Lydia has found her chunk and has plumped up nicely 😉 She is 19 pounds (56%) and is 27 inches in length (31%). She is still in nine month …
Lydia’s 8th Month
Oh this sweet girl. We love her so very much. She brings everyone so much joy . Lydia grew a lot this month. She is now 17 pounds 4 ounces (39%) and is 26 3/4 inches in length (41%). We are just moving her up to nine month size clothes. She is eating well and …