Lydia lost her first tooth! And she officially wins the award for being the youngest to lose a tooth! We’ve noticed a couple of wiggly teeth lately, but they weren’t wiggly enough to pull (or so we thought!). But then Mark looked over at Lydia and saw some blood coming out of her mouth and …
Two weeks ago, Lydia had an appointment at the Rett Clinic. We were so grateful we were able to get in when we did. It has been eighteen months since her last one and a lot has changed for her since then. This is a marathon of an appointment but it went so well! Making …
I don’t even know who this little girl is anymore! I have never touched Lydia’s hair before – I was too scared! Lydia is not very still and I was so worried about making a mistake. But I finally just went for it and we think it turned out so cute! BEFORE / AFTER
I really don’t like starting another project before we have finished the last but…this is kind of a situation of “if you give a mouse a cookie…”. We started Sarah’s room refresh last March and we really went for it for a couple weeks and then we stopped. Truly, nothing done, until this last week. …
Oh goodness. I’ve been putting off writing this post. It has been a tough week almost two weeks. Back Story Remember when we had our disaster hospital stay back in November? That visit (mostly just that sleep study night) was horrible for Lydia. And it did a number on me. I came home feeling defeated. …
This last year, I have tried to incorporate some more “holiday” school into our family’s homeschooling life. We did a little something extra for Valentine’s Day earlier this year and then we did “Thanksgiving School” last month. It has been such a fun way to learn something new but also set the day apart as …
Time for a Lydia Appreciation Post! This girl. It is no secret that she is the light of our lives. I sometimes worry about writing things like that – I hope no one thinks we value one kiddo above another – but truly, we all adore Lydie and she is openly each of the kid’s …
Last week, Lydia had her long awaited EMU stay (EMU stands for “Epilepsy Monitoring Unit”). I had been dreading this visit ever since I found out about it. I just felt uneasy about it. Here is how it went… ENT Before we were admitted to the hospital, Lydia had an appointment with a new doctor …
Jacob, Sarah, Benjamin, and Lydia had their Primary Program today. It was the one and only time all four of them were in it together. I am so grateful for the gospel truths they are learning. “I can do all things through Christ which strengtheneth me.” Philippians 4:13
October is Rett Syndrome Awareness month and it seems like a good time to give an update on all things with Lydie’s health from the past year. This last year has seen mountains and valleys. I remember speaking with a friend in April about how things were going really good with Lydie at the time. …