Lydia turned nursery-age during the shut down of COVID and it wasn’t high on my list of things to think about. But when they announced earlier this month that we would begin going back to church for the whole two hours, I realized that it was something we needed to discuss. Mark and I agreed …
This has been quite a year. Last March, a week before the world shut down to COVID, was the first time we expressed concern about our sweet little girl to our pediatrician. Since then, there has been a DEPTH of emotions. We have been stretched {sometimes it felt to our breaking point}. But this week, …
Just two days after Lydia’s EEG, we went down for a different appointment at Primary’s. We went back to the beginning (this was the first clinic Lydia had an appointment with) and had an appointment at the HEFT Clinic. We met with the same gastroenterologist, speech language pathologist, and dietitian. The reason for this appointment …
About a month ago, Lydia went in for her first EEG. The results showed that it was abnormal. Lydia didn’t show a seizure but it showed a “seizure tendency”. We were given a couple options and decided that we wanted to do further testing to see if we could figure out IF there was a …
The day after Lydia’s ABR, she had a BIG physical therapy appointment. On top of all of Lydia’s doctor’s appointments, she is still receiving physical therapy, feeding therapy, language therapy, and they are talking about starting occupational therapy 😳. It’s A LOT. There’s no other way to put it. But we love Lydia’s therapists and …
Last week, Lydia had her ABR {auditory brainstem response} test. We were having some concerns about her hearing. It is a debated issue around here how well Lydia hears. We don’t really know if she knows her name or anything else really. She’s had two “booth” screenings and they came back inconclusive. They basically told …
We were so sure that after we completed our mammoth list of tests from our developmental specialist that we would have a direction for Lydia. How could we not?! Our two biggest tests that we thought would give us some guidance were the MRI and genetic test. When we got the news that both came …
Oh geez. We had a little break from tests and appointments for Christmas, but the next week we hit the ground running, again. Here is a little bit of a dump of all of the updates we have from the last two weeks. Hearing Screening Our first appointment was with the audiology clinic at Primary’s. …