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Life

Sleep Study

I have mentioned it many times before, but sleep is a struggle for Lydia. It always has been. And things have definitely been difficult lately with that. We started using melatonin in September and there was hardly any change. Lydia would fall asleep more easily, but other than that, it was the same routine. Usually …

Life

G-Tube

Oh this little lady. This last month has been a doozy. It has been a long one. And to be honest, this particular event was something I didn’t even want to think about. We were first approached about getting a G-tube for Lydia last spring. And I did NOT want it. I hated the idea …

Life

Rett Clinic

Lydia takes on Denver! This week Mark, Lydia, and I were able to go to Colorado so Lydia could attend the Rett Clinic at the Children’s Hospital Colorado. Very quickly after receiving Lydia’s diagnosis and scrambling to find everything we could about it, we discovered that there are several Rett Clinics throughout the country. This …

Life

Overwhelm

Three Month Lydia Update: It has now been three months since Lydia’s diagnosis and it feels so much longer. If I were to give one word to update on where we are at three months in, it would be OVERWHELM. I am so overwhelmed ALL. THE. TIME. Calm Before the Storm The first two months …

Life

New Base Line

It has been a month since Lydia was diagnosed with Rett Syndrome and I’ve been having some thoughts that I want to write down. When Lydia received her diagnosis, the thoughts that I shared were completely honest. I felt so much peace about everything. And I am so grateful for that. I don’t know if …

Life

First Day of Nursery

Lydia turned nursery-age during the shut down of COVID and it wasn’t high on my list of things to think about. But when they announced earlier this month that we would begin going back to church for the whole two hours, I realized that it was something we needed to discuss. Mark and I agreed …

Life

Rett Syndrome

This has been quite a year. Last March, a week before the world shut down to COVID, was the first time we expressed concern about our sweet little girl to our pediatrician. Since then, there has been a DEPTH of emotions. We have been stretched {sometimes it felt to our breaking point}. But this week, …