This sweet, sweet girl. I wish everyone could have a Lydia in their life. My feelings for our little one are so tender. This last year has been anything but easy for her. As I have reflected on this last year for her my heart has hurt. She has undergone surgery, is connected to a …
Sleep Study
I have mentioned it many times before, but sleep is a struggle for Lydia. It always has been. And things have definitely been difficult lately with that. We started using melatonin in September and there was hardly any change. Lydia would fall asleep more easily, but other than that, it was the same routine. Usually …
Rett Syndrome Awareness
This month marks six months since Lydia was diagnosed with Rett Syndrome, and honestly, it might as well have been six years. This has been the fastest six months and yet, I honestly can’t hardly remember life before. So much has changed that sometimes life feels foreign to me still. I have been thinking about …
Rett Clinic
Lydia takes on Denver! This week Mark, Lydia, and I were able to go to Colorado so Lydia could attend the Rett Clinic at the Children’s Hospital Colorado. Very quickly after receiving Lydia’s diagnosis and scrambling to find everything we could about it, we discovered that there are several Rett Clinics throughout the country. This …
Lydia’s 2nd Birthday
This sweet little angel is two years old! Time is just flying by and I cannot believe that it has been two years with the sweetest little one. Lydia fills our world with so much pure joy. Her spirit is so strong. I will never cease to be amazed by her. She gives us perspective. …
New Base Line
It has been a month since Lydia was diagnosed with Rett Syndrome and I’ve been having some thoughts that I want to write down. When Lydia received her diagnosis, the thoughts that I shared were completely honest. I felt so much peace about everything. And I am so grateful for that. I don’t know if …
First Day of Nursery
Lydia turned nursery-age during the shut down of COVID and it wasn’t high on my list of things to think about. But when they announced earlier this month that we would begin going back to church for the whole two hours, I realized that it was something we needed to discuss. Mark and I agreed …
Rett Syndrome
This has been quite a year. Last March, a week before the world shut down to COVID, was the first time we expressed concern about our sweet little girl to our pediatrician. Since then, there has been a DEPTH of emotions. We have been stretched {sometimes it felt to our breaking point}. But this week, …