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Life

Lydia Rose

Time for a Lydia Appreciation Post! This girl. It is no secret that she is the light of our lives. I sometimes worry about writing things like that – I hope no one thinks we value one kiddo above another – but truly, we all adore Lydie and she is openly each of the kid’s …

Life

EMU Stay

Last week, Lydia had her long awaited EMU stay (EMU stands for “Epilepsy Monitoring Unit”). I had been dreading this visit ever since I found out about it. I just felt uneasy about it. Here is how it went… ENT Before we were admitted to the hospital, Lydia had an appointment with a new doctor …

Life

Life with Rett

October is Rett Syndrome Awareness month and it seems like a good time to give an update on all things with Lydie’s health from the past year. This last year has seen mountains and valleys. I remember speaking with a friend in April about how things were going really good with Lydie at the time. …