October is Rett Syndrome Awareness month and it seems like a good time to give an update on all things with Lydie’s health from the past year. This last year has seen mountains and valleys. I remember speaking with a friend in April about how things were going really good with Lydie at the time. …
And just like that we are beginning another school year as a family. Time is going by so quickly! We are excited for this upcoming year. – our seventh year homeschooling! 2023 – 2024 <– (that is totally bizarre that this is the year we are going into!) here we go! Jacob – Sixth Grade …
Last week we had a sort of unexpected night. Lydia has been on a wait list for a sleep study for several months now and we got a call around lunch time asking if we could take the spot for that night and we did! Of course, it was a night Mark was working, but …
Oh sweet Lydia. You are brave, a little mischievous, patient, a lover of music, calm, and filled with pure goodness from head to toe. We were so happy to celebrate YOU! Hundred Acre Wood Party Two of my dearest friends sent me the complete Winnie-the-Pooh Book Collection after I had Jacob and it has been …
Tuesday morning began almost like any other day. I got up at 6 and usually if Lydia isn’t up already, she is very soon after me. But she didn’t get up. This always makes me worried. The more time that went by the more worried I became. Finally around 7:30, Mark went in and Lydia …
A couple weeks ago, Lydia had a swallow study done. This is something that has been talked about since our very first appointment we had for Lydia when we became concerned about her development. Lydia’s reflux is just relentless. She is on medication and we do a lot at home to try and help her …
Thoughts this Winter Was it just me or did this winter FLY by?! I think it probably was just me. I know this winter was brutal for a lot of people weather wise – but it was pretty good to us academically! I felt like we finally got into our groove after months and months …
Lydia was asked to give a talk in Primary. At first, I must admit, I really didn’t know what to do. I was grateful that they wanted to include Lydie but unsure about how to help her with this. I asked Sarah if she would help Lydia and she was thrilled! This talk was tender …
On Thanksgiving day, Lydia started to come down with a fever. Lydia gets a LOT of fevers. Sadly, she seems to pick up on anything and everything going around. Well, do you want to know what was going around viciously the end of November? RSV. Lydia’s fever remained day after day. She also had a …