Life

G-Tube

Oh this little lady. This last month has been a doozy. It has been a long one. And to be honest, this particular event was something I didn’t even want to think about. We were first approached about getting a G-tube for Lydia last spring. And I did NOT want it. I hated the idea …

Life

Rett Clinic

Lydia takes on Denver! This week Mark, Lydia, and I were able to go to Colorado so Lydia could attend the Rett Clinic at the Children’s Hospital Colorado. Very quickly after receiving Lydia’s diagnosis and scrambling to find everything we could about it, we discovered that there are several Rett Clinics throughout the country. This …

Life

Overwhelm

Three Month Lydia Update: It has now been three months since Lydia’s diagnosis and it feels so much longer. If I were to give one word to update on where we are at three months in, it would be OVERWHELM. I am so overwhelmed ALL. THE. TIME. Calm Before the Storm The first two months …