Life

Jacob’s 13th Birthday

THIRTEEN! TEENAGER! HOW?!!! Even though I do not understand how we got here, or how time is possibly moving as quickly as it is, I absolutely loved celebrating this guy. Jacob is so easy to love and is such an amazing young man. Jacob requested orange rolls for his birthday breakfast. Lydie had to scurry …

Life

EMU

When Lydie started having seizures again at Christmas, we had to reevaluate things with her neurologist, Dr. B (our absolute favorite doctor). We felt very blessed that we were able to adjust her current seizure med and add an additional seizure med (without side effects) and Lydie’s seizure’s seemed under control again. We met with …

Life

Benjamin Lewis

⭐ Benjamin Appreciation Post ⭐ The last several months, Mark and Ben have loved reading together at night. They have read all sorts of long books (Jurassic Park, The Hobbit, Charlie and the Chocolate Factory, etc). It is sweet to see Ben sketching in his bed while Mark reads to him from the chair. Ben …

Life

Journal // May 2025

Our every day May moments 🌸 Snoozing Mark has a gift to sleep anywhere. He me laugh when I found him like this with Lydia. He is ready to help with a binkie! 😉 And Lydie did a lot of resting up this month too with a lot of sick days. Mother’s Day I had …

Life

Lydia’s 6th Birthday

Lydia is SIX! It feels like such a big milestone! Rainbow Party Lydia is filled with all the hope and happiness of rainbows. We kept the day simple because we knew that was what Lydie likes best. We played games, watched a movie, went on a walk, and just spent time together at home. Lydie’s …