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Life

72 Hour EEG

About a month ago, Lydia went in for her first EEG. The results showed that it was abnormal. Lydia didn’t show a seizure but it showed a “seizure tendency”. We were given a couple options and decided that we wanted to do further testing to see if we could figure out IF there was a …

Life

ENT

When Lydia was getting her ABR last month, the team that was sedating her was concerned that she might have a floppy airway (there is a technical term but I can never remember it!). They highly encouraged me to get Lydia seen by an ENT. Our case manager got right on it and we got …

Life, Travel

Our 10th Anniversary

When Plans Change Last week, Mark and I were able to celebrate our ten year anniversary. Can you believe it?! TEN YEARS! Sad story. When Mark and I were still in our very first year of marriage, we decided that for our ten year anniversary we would go on a special trip. And we’ve been …

Life

Valentine’s Day

I love Valentine’s Day. Since our anniversary is so close to Valentine’s Day, it’s always been more about family love for us and I love that we do that! My favorite tradition BY FAR is exchanging our love notes to one another. These have become such treasures to read throughout the years. It’s so sweet …

Life

Sledding

This weekend we did our February Family Fun – SLEDDING! It was pretty cold – like 2* cold {and that’s actual temperature – not wind chill!}. But we were all so excited I genuinely don’t think any of us noticed! We had gotten a decent little snowstorm and didn’t want to be on the roads …

Life

Stander

The day after Lydia’s ABR, she had a BIG physical therapy appointment. On top of all of Lydia’s doctor’s appointments, she is still receiving physical therapy, feeding therapy, language therapy, and they are talking about starting occupational therapy 😳. It’s A LOT. There’s no other way to put it. But we love Lydia’s therapists and …

Life

ABR

Last week, Lydia had her ABR {auditory brainstem response} test. We were having some concerns about her hearing. It is a debated issue around here how well Lydia hears. We don’t really know if she knows her name or anything else really. She’s had two “booth” screenings and they came back inconclusive. They basically told …

Life

EEG

Since we are three hours away, we really try and make the most of our appointments at Primary’s. This day was a LONG one but we were able to get a lot done! Lab Work First up, was lab work. After our last meeting with the neurologist, they put in more lab work for this …