Life

The day after Lydia’s ABR, she had a BIG physical therapy appointment. On top of all of Lydia’s doctor’s appointments, she is still receiving physical therapy, feeding therapy, language therapy, and they are talking about starting occupational therapy 😳. It’s A LOT. There’s no other way to put it. But we love Lydia’s therapists and …

Last week, Lydia had her ABR {auditory brainstem response} test. We were having some concerns about her hearing. It is a debated issue around here how well Lydia hears. We don’t really know if she knows her name or anything else really. She’s had two “booth” screenings and they came back inconclusive. They basically told …

Since we are three hours away, we really try and make the most of our appointments at Primary’s. This day was a LONG one but we were able to get a lot done! Lab Work First up, was lab work. After our last meeting with the neurologist, they put in more lab work for this …

We were so sure that after we completed our mammoth list of tests from our developmental specialist that we would have a direction for Lydia. How could we not?! Our two biggest tests that we thought would give us some guidance were the MRI and genetic test. When we got the news that both came …

Oh geez. We had a little break from tests and appointments for Christmas, but the next week we hit the ground running, again. Here is a little bit of a dump of all of the updates we have from the last two weeks. Hearing Screening Our first appointment was with the audiology clinic at Primary’s. …